Ensayos clínicos actuales Xantoastrocitoma pleomórfico. Clinical trials xanthoastrocytoma

A continuación se detallan los ensayos clínicos actuales en los que participan pacientes con xantoastrocitoma pleomórfico según la clinical trials.gov
https://clinicaltrials.gov/ct2/results?cond=xanthoastrocytoma

Row	Saved	Status	Study Title	Conditions	Interventions	Locations
1		Recruiting	Phase II Pediatric Study With Dabrafenib in Combination With Trametinib in Patients With HGG and LGG	Diffuse Astrocytoma Anaplastic Astrocytoma Astrocytoma (and 19 more...)	Drug: dabrafenib Drug: trametinib Drug: Carboplatin with vincristine	Childrens National Medical Center Washington, District of Columbia, United States Dana Farber Cancer Institute Boston, Massachusetts, United States Novartis Investigative Site Berlin, Germany (and 4 more...)
2		Recruiting	A Phase I Study of Mebendazole for the Treatment of Pediatric Gliomas	Pilomyxoid Astrocytoma Pilocytic Astrocytoma Glioma, Astrocytic (and 9 more...)	Drug: Mebendazole Drug: Vincristine Drug: Carboplatin (and 3 more...)	Cohen Children's Medical Center of New York New Hyde Park, New York, United States
3		Withdrawn	Efficacy of 68Ga-DOTATOC Positron Emission Tomography (PET) CT in Children and Young Adults With Brain Tumors	Acoustic Schwannoma Adult Anaplastic Astrocytoma Adult Anaplastic Ependymoma (and 92 more...)	Radiation: gallium Ga 68-edotreotide Procedure: positron emission tomography Procedure: computed tomography Other: laboratory biomarker analysis	University of Iowa Hospitals and Clinics Iowa City, Iowa, United States
4		Recruiting	SJDAWN: St. Jude Children's Research Hospital Phase 1 Study Evaluating Molecularly-Driven Doublet Therapies for Children and Young Adults With Recurrent Brain Tumors	Anaplastic Astrocytoma Anaplastic Ependymoma Anaplastic Ganglioglioma (and 53 more...)	Drug: Gemcitabine Drug: ribociclib Drug: sonidegib (and 3 more...)	St. Jude Children's Research Hospital Memphis, Tennessee, United States
5		Terminated Has Results	Cyproheptadine in Preventing Weight Loss in Children Receiving Chemotherapy for Cancer	Cancer	Drug: cyproheptadine hydrochloride Other: placebo	Miller Children's Hospital Long Beach, California, United States Connecticut Children's Medical Center Hartford, Connecticut, United States A.I. duPont Hospital for Children Wilmington, Delaware, United States (and 11 more...)
6		Completed	Imetelstat Sodium in Treating Young Patients With Refractory or Recurrent Solid Tumors or Lymphoma	Brain and Central Nervous System Tumors Lymphoma Lymphoproliferative Disorder (and 2 more...)	Drug: imetelstat sodium Other: laboratory biomarker analysis Other: pharmacological study	UAB Comprehensive Cancer Center Birmingham, Alabama, United States Children's Hospital of Orange County Orange, California, United States UCSF Helen Diller Family Comprehensive Cancer Center San Francisco, California, United States (and 20 more...)
7		Active, not recruiting	Crizotinib in Treating Young Patients With Relapsed or Refractory Solid Tumors or Anaplastic Large Cell Lymphoma	Brain and Central Nervous System Tumors Lymphoma Neuroblastoma Unspecified Childhood Solid Tumor, Protocol Specific	Drug: crizotinib Other: pharmacogenomic studies Other: pharmacological study	Children's Hospital of Alabama Birmingham, Alabama, United States University of Alabama at Birmingham Cancer Center Birmingham, Alabama, United States Children's Hospital of Orange County Orange, California, United States (and 23 more...)
8		Unknown †	Photodynamic Therapy With Porfimer Sodium in Treating Patients With Refractory Brain Tumors	Brain and Central Nervous System Tumors Metastatic Cancer	Drug: verteporfin Procedure: conventional surgery	Medical College of Wisconsin Cancer Center Milwaukee, Wisconsin, United States Midwest Children's Cancer Center at Children's Hospital of Wisconsin Milwaukee, Wisconsin, United States

† Study has passed its completion date and status has not been verified in more than two years.

Para encontrar estudios clínicos en España:
https://reec.aemps.es/reec/public/web.html

En este otro enlace hay una línea de comentarios relacionados con el tumor dentro de la página Inspire Brain Tumor (American Brain Tumor Association)
https://www.inspire.com/conditions/pleomorphic-xanthoastrocytoma

Un estudio interesante sobre Pleomorphic Xanthoastrocytoma: Natural History and Long-Term Follow-Up
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4400218/

Portal de registro de enfermedades raras en España:
https://registroraras.isciii.es/Comun/Inicio0.aspx

Red de ensayos clínicos pediátricos:
http://www.reclip.org/

Fundación Columbus: Ayuda a que niños con tumores cerebrales puedan acceder a tratamientos con protonterapia en otros países
http://fundacioncolumbus.org/insistimos-en-la-importancia-de-la-protonterapia-en-espana-para-tratar-el-cancer-infantil/

Asociación solidaria La hora violeta trabaja con pacientes con fibromatosis
https://lahoravioleta.org/neurofibromatosis/