Información que manda el National Cancer Institute de EEUU ante la petición de información para este blog sobre el xantoastrocitoma. Además incluye algunas direcciones que pueden ser interesantes,
Cualquier persona puede dirigirse a dicha dirección para obtener información:
cancer.gov_staff@mail.nih.gov
"You may be aware that grade 3 xanthoastrocytoma is referred to as an anaplastic pleomorphic xanthoastrocytoma (APX). This is a type of astrocytoma . You may wish to view "Childhood Astrocytomas Treatment (PDQ®) – Health Professional Version" for information on this type of cancer.This summary from PDQ, the NCI's comprehensive cancer information database, can be found at https://www.cancer.gov/types/brain/hp/child-astrocytoma-treament-pdq#section/all. Information written in non-technical language can be found in the patient version of this resource. Please also note that these treatment summaries are also available in Spanish. To view the information in Spanish, please follow the Español link located on the top right corner of the pages.
Additional information on APX may be available by searching the medical literature for published articles. The PubMed® database provides a free search tool to help people find articles of interest in the health and medical sciences. PubMed is a service of the National Library of Medicine (NLM), a component of the National Institutes of Health. PubMed can be found at http://www.ncbi.nlm.nih.gov/pubmed.
You may also find the following resources related to childhood cancer useful for your blog:
--"Support for Families when a Child Has Cancer": This information can help parents, children with cancer, and siblings to cope when a child is being treated for cancer. It answers questions that both parents and children with cancer may have. Tips to help children cope with physical and emotional changes are also provided. This information is available at https://www.cancer.gov/about-cancer/coping/caregiver-support/parents.
--"Children with Cancer: A Guide for Parents": This guide is for parents who have a child with cancer. It has information about childhood cancer and tips to help the family to cope. It can be accessed at https://www.cancer.gov/publications/patient-education/guide-for-parents.
Additionally, the Children's Oncology Group (COG), an NCI-supported clinical trials group, is the world's largest organization devoted exclusively to childhood and adolescent cancer research. These cancer centers have met strict standards of excellence for childhood cancer care. The COG website is available at https://www.childrensoncologygroup.org/.
Thank you for writing."
This blog wants to be a window open to all information, research, news, experiences and opinions that exist on xanthoastrocytoma. It is not scientific but it is informative. It has three objectives: - Share information. - Promote research. - Connect amongst themselves those interested in this tumor: patients, relatives, doctors and information and communication media. Este blog quiere ser una ventana abierta a todas las informaciones..que existan sobre el xantoastrocitoma.
sábado, 25 de agosto de 2018
The National Cancer Institute (NCI) seeking resources related to xanthoastrocytoma.
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